Instructions for users

This registry has 3 components:

  • The diagnosis and presentation form
  • The 30 day follow up form
  • The 60 day follow up form

Day 0 is defined as the onset of SARS-CoV-2/COVID-19 symptoms, or positive test, whichever is earlier.

Any field that is not known should be left blank or marked as UNKNOWN if required.

No identifying information for the patient is requested, and none should be provided.

At the completion of the form, respondents will see a unique code for each form that respondent should retain, in the event that they wish to return to add or change any information.

The data entered for each case will be available to download (PDF) at the completion of the form and emailed to the email address provided.

All initial case reports will receive the 30 Day Followup form by email. Cases which have not recovered at 30 days will receive the 60 Day Followup form by email.

For questions about this project, contact COVID19ChildhoodCancer@STJUDE.ORG.

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